I think I'm missing posting this by a matter of minutes in the end, but HAPPY EASTER to everyone!! What an Easter weekend and I have to say that so far it has been great.
Yesterday I think was my favourite day in a long long time. Just the 4 of us and that was who it was about. We started with a gorgeous picnic in Marlow park in beautiful sunshine. For once the kids had what they wanted to eat for the picnic (scary bow grateful a child then us for a packet of custard creams and a pear!!), played crazy golf, went on a bouncy castle and merry-go-round and played make believe!!
Then it was home to drop homemade eggs round to some of their friends, followed by playing in the sprinkler in the garden! God that bought back some great memories of being a kid and they loved it....esp sam!
Followed it all off with a great BBQ that they devoured and it couldn't have been a nicer day! Truly my happiest day in ages.
Then today we went off to the midlands for a day with the inlays and again a fantastic day. Our kids just love their nanny and granddad very much and their cousin Hugo so Easter egg hunts and playing up there was just fab for them.
I've been bit ropey today....exhausted despite sleeping lots in the day and horrid peripheral neuropathy that feels like my palms,feet and calves are burning the whole time, but somehow even that has seemed bearable when the time has been so nice.
Day on the house tomorrow...some painting and gardening I think...nay e a bit of fun for the kids too.....
Just a quick comment about the hospital parking really. Like you I'm spending many hours at the hospital for my velcade.( Worse than that, my kidneys have also packed up, so I'm there 3 times a week for dialysis).
ReplyDeleteOur hospaital do a monthly pass for something like £9, or I believe you can get a years one if you have a letter fom the consultant, do your hospital have anything like that? If you haven't already checked it may be worth enquiring. The other option is how bad is your back? My spine is fractured in 2 places, this means I have days of extreme pain and actually qualify for a disabled pass. Not much consolation, but that enables free parking. I didn't get that initialy, and it depends how strict your local council is (they issue them), but just two things to think about x
Thanks delia. Sorry to hear about your kidneys...not good news at all. I have just found out the hospital does an annual pass for £100 so we've invested. And I also got a disabled pass for those days I'm exhausted but need it....doesn't work for hospital as the Marsden is a cancer hospital so they charge everyone to park but at least we save money with some of our other parking. I really hope all goes well with you and your treatment. Thanks again for the advice. X
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