Well I'm sitting at home today in peace with the remnants of 18cm of snow from yesterday! I have to say, despite lots of bah humbug comments from me on facebook, we took the kids for their first sledging experience and we all loved it! It was great for me as I'd not wanted to do it (hate the cold!) but once I was there I just loved it....and loved having fun with Nick and the kiddies. Rebecca thought it was mega cool going down fast, and even Sam enjoyed it when he stopped winging!!
Note to self after it....1. make sure I do lots of fun things 2. Stop making excuses as to why I can't do fun things 3. Stop thinking that the time might come when I can't....it hasn't and hopefully it won't!
Hope you enjoy the photos from it!
Also discovered this link on the Under 50's site...never heard of Frank Turner but this song seemed quite apt!
ReplyDeleteHi Deb
ReplyDeleteJust found your blog and have been reading your background with interest as it's very similar to mine (except that I'm a little bit older and male).
I also have smouldering (hate that word!!) myeloma and was also diagnosed on return from a holiday. That was in November 2004 and I'm still very well and showing no signs of MM.
I did have some low dose chemo when my paraprotein level reached 40+ but I tolerated it (CTD) well and my paraprotein went down to 11. Since then I have been taking natural supplements, i.e. curcumin, resveratrol and omega 3 capsules. I recommend these, particularly curcumin, as I am convinced they have slowed down progress. I also believe that curcumin has helped my general well being and has even improved my eyesight. Tho' being Scottish and having paid £300+ for prescription specs, has not gone down well!! My bloods get checked every 6 weeks or so and if required my consultant is prepared to put me on to a maintenance therapy of Thalidomide rather than going straight into a Stem Cell Transplant, which I'd rather delay for as long as possible. Would be interesting to hear about your treatment.
P.S. Nice photographs, but getting a bit fed up with the snow by now.
hi Cameron....gosh didn't think anyone would actually find this (or actually read it!!). That's really interesting to hear your story. Did you have other symptoms or not? My consultant won't give me chemo unless I develop symptoms or my other readings go up....my protein has just gone up to 40 :( I'm quite pleased really as I want my kids to be as old as possible before I have to go through that.
ReplyDeleteI had thought about curcurmin but then read some article (which I can't find now) which suggested it was really dangerous and it totally put me off. I find it really hard to decide what I should/ shouldn't do if it comes to it....mainly due to the kids...do you have kiddies?
Glad to hear your eyesight got better...have to be some benefits...lol! I'm 1/4 scottish so can imagine how hard that cost hit you!!
So, how is the snow up there now? Ours has finally gone....thank god....like you, we'd had enough of it after a number of times with no power or heating!!