tag:blogger.com,1999:blog-2265126405631426808.post8847400166409325892..comments2023-04-30T09:21:07.144+01:00Comments on Debs' Journey with Myeloma: Bring on Cycle 4 - CRDDebGhttp://www.blogger.com/profile/14849464231835226071noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-2265126405631426808.post-33066263389684158612011-02-22T10:59:29.739+00:002011-02-22T10:59:29.739+00:00The CDT protocol I had has cyclophosphomide which ...The CDT protocol I had has cyclophosphomide which states on the enclosed leaflet that after several years of taking it there is an additional risk of leukemia but since this has been in use some time now no one bats an eyelid. It's just because Rev is new and we are all so much more aware with the internet. If we were relying on the TV news or newspapers we'd probably be oblivious. :DAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2265126405631426808.post-45231322550511822812011-02-19T17:33:08.222+00:002011-02-19T17:33:08.222+00:00It's hard not to think about how MM has affect...It's hard not to think about how MM has affected our kids. Our daughter was 8 when Tim was dx'ed. I beg God to let him stay here and raise her. So hard to think of her losing a parent, especially at a young age. I tell Tim that if he thinks he's gonna bail on being here for the teen years(they start this MAY), he's got another thing comin'!!! Every birthday that she celebrates with both of us here, I exhale just a little. BTW, I know people who have been on Rev 5 years, 10 years etc. None have developed secondary cancers despite all those years of continual use. I always say, "there's good and bad to everything." I think the good far outweighs the bad with Rev.tim's wifehttps://www.blogger.com/profile/08605449376728668764noreply@blogger.comtag:blogger.com,1999:blog-2265126405631426808.post-14521294171198297712011-02-17T15:57:44.435+00:002011-02-17T15:57:44.435+00:00I'm constantly confused. I've resolved to ...I'm constantly confused. I've resolved to leave all the technical stuff to Mike and just pick up the pieces as we go along. lolLorna A.https://www.blogger.com/profile/14476134649136494702noreply@blogger.comtag:blogger.com,1999:blog-2265126405631426808.post-39332594184369675392011-02-16T10:22:12.686+00:002011-02-16T10:22:12.686+00:00Hi Jerry,
Yes there is a correlation, but sadly t...Hi Jerry,<br /><br />Yes there is a correlation, but sadly this time they didn't give me my total protein!! I had been planning to use that to do exactly what you said, although she has warned me that I may find that my total protein stays the same, but my paraprotein drops...better that way than the other!!<br /><br />As for my paraprotein it is measured in g/l. <br /><br />Sandy, thanks for your comments too. I know what you mean about the alarmist comments. We aren't too worried about the whole thing, but just want to keep our finger on the pulse with it. At the end of the day, there won't be many drugs out there that have no negative impact - they are too strong which is why we use them in the first place. You have to make your decisions in life don't you! It is good to have read all of the people that aren't agreeing with the reports - it helps to keep the old head screwed on the right way round!<br /><br />Hope you are both well<br />DebsDebGhttps://www.blogger.com/profile/14849464231835226071noreply@blogger.comtag:blogger.com,1999:blog-2265126405631426808.post-30256650290824510052011-02-16T05:45:54.268+00:002011-02-16T05:45:54.268+00:00It is quite natural to think about the kiddies and...It is quite natural to think about the kiddies and this disease and how it might all play out, and as I have a relative with MM who has a young daughter, it does play havoc with the head to think about the future. But the Rev issues with secondary cancers seem to be more alarmist than factual according to some info from various sources in the U.S. Read some of the past posts and perhaps it will put your mind at more ease on that... thinking of you.Sandyhttps://www.blogger.com/profile/02265922352726668243noreply@blogger.comtag:blogger.com,1999:blog-2265126405631426808.post-8479874103924680972011-02-16T00:49:42.042+00:002011-02-16T00:49:42.042+00:00You could look at your previous blood labs and see...You could look at your previous blood labs and see if there is a correlation between your total protein and your paraprotein. Your total protein is the albumin, IgG, IgA, IgM, and your paraprotein. The chemo tends to decrease your good immunoglobulins so if you do have a decrease in your total protein only some of the decrease may be due to a decrease in paraprotein. What is the unit of measure for your paraprotein? Over here it is g/dL. One of your previous numbers was 27 and I don’t think that is g/dL.Jerryhttps://www.blogger.com/profile/08334002321240267987noreply@blogger.com